IBS
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IBS

This is a discussion on IBS within the Physical Health forums, part of the Mental and Physical Health category; Short and sweet: Two years ago I had a bout of gastroenteritis which lead to IBS or SIBO (we still ...

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Old 11-07-14, 04:54 AM   #1
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Short and sweet:

Two years ago I had a bout of gastroenteritis which lead to IBS or SIBO (we still don't know which one).

It's a really bad illness, but now that i've been reading these forums i'm not so sure anymore

Whenever I go out I always have to canvas the premises for wash rooms incase something happens :/.

I'm tired of dealing with the pain and nausea associated with this illness. I've seen countless GI specialists and doctors and they just don't seem to give a wooden nickel. It's almost as if the illness has become a fucking joke within the medical community, as if it's something irrelevant and not serious at all...

I just don't understand how an illness that affects at least 10-20% of the population can have such limited treatment, and can be so damn right not understood at all. You have no idea how many doctors have told me that my problems are all in my head even though there is so much recent evidence that IBS is not caused by mental issues.

Currently i'm seeing a doctor in the US who specializes in functional medicine but it is very very very very expensive and I just feel like nobody fucking cares about my health so long as their health is ok and their bank account is loaded with money...

I don't know :/

This illness has really impacted my life in a negative manner (to put it lightly), and I feel like my general practitioners have no clue, my psychiatrists and psycholgists think all the problems are in my head, and my GI specialists don't know their head from their ass and don't keep up to date with reasearch.

TL;DR I've had IBS/SIBO + depression for about 2 years now and I feel like nobody cares and nobody can offer good advice on how to go about my life.

I'm 20 yr old, M, currently back in university taking courses part-time, but i'm not able to attend any classes because of this illness... I just try to manage with the textbooks :(
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Old 11-07-14, 11:04 AM   #2
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I am so sorry to hear this.
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Old 11-07-14, 06:02 PM   #3
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OHmy~Welcome first off.

I suffer from IBS in life as well. It's not something that's always easy to live with, but you can have more control over it then what you think. First of all, cutting out soda, greasy, too much fatting foods, food high in sodium/salt, will also reduce the flare ups. You should really stick to a healthy diet. Eating foods high in too much fiber can also cause it to flare. If you must eat something that's fatty, like we all need to once in awhile, just remember to make sure that you give yourself ample enough time to reach a bathroom or your own living place. You already know whatever you eat makes you need to use the bathroom;immediately. It's truly not something in your head, but it's not always that easy to find for a doctor. Mine wasn't for a long time. Finally, I just started reading about it & what I needed to do for myself. That's another avenue for you to consider. Reading up on things, finding out information, & using what we read to apply it to our life.

I hope that's a start to help you find some help/relief with what you're dealing with. If not, sure someone else has some other suggestions as well.
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Old 03-03-15, 04:34 AM   #4
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Quote:
Originally Posted by Aries View Post
OHmy~Welcome first off.

I suffer from IBS in life as well. It's not something that's always easy to live with, but you can have more control over it then what you think. First of all, cutting out soda, greasy, too much fatting foods, food high in sodium/salt, will also reduce the flare ups. You should really stick to a healthy diet. Eating foods high in too much fiber can also cause it to flare. If you must eat something that's fatty, like we all need to once in awhile, just remember to make sure that you give yourself ample enough time to reach a bathroom or your own living place. You already know whatever you eat makes you need to use the bathroom;immediately. It's truly not something in your head, but it's not always that easy to find for a doctor. Mine wasn't for a long time. Finally, I just started reading about it & what I needed to do for myself. That's another avenue for you to consider. Reading up on things, finding out information, & using what we read to apply it to our life.

I hope that's a start to help you find some help/relief with what you're dealing with. If not, sure someone else has some other suggestions as well.
Thanks for input, i read the response awhile ago but didn't respond. I had already done most of this though.

I just wanted to let you guys know i'm starting distance education in computer science soon! I can't wait! I hope i can make it :) because going to a regular university is mainly hopeless in my situation. I tried to do it for two years and only ended up finishing about 1 year worth of courses; which is not horrible but i always wanted to try this distance education :) because i can probably go faster with it and it will be easier on my body!
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Old 03-03-15, 09:22 AM   #5
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I know the feeling, like they really blow off all the physical stuff because ' there aren't really any physical abnormalities" and they really don't know why it happens so they say ' stress triggers it" and they can only treat the symptoms. Stress is only a little part of it. Something has definitely gone haywire with the nerves in the digestive tract. And it sucks but it is real! I have IBS-C. And they just gave me huge bottles of miralax. And told me just keep eating fiber and drinking water. But i keep telling them, that's not my issue. My problem is everything just freezes in a huge giant painful spasm ( I have been to the ER for it) so they gave me Valium. Which relaxes the spasm and takes care of the pain. But seriously...giant bottles of laxatives? You hear warnings about them, like they should be used short term or you'll screw up your guts. My guts are already screwed up enough. Colonoscopy results: diverticulosis. And that's it. IBS is a real physical problem even if they can't see it visually. I wish they could do the electrical nerve test they do for every other muscle spasm problem. Also, mine started with degenerative disks problems. One of my nerves is being pressured, it happens to be on my lower left lumbar, and I swear, it's like a giant shark bite pattern from my back to the inside of my left hip. Now it goes down my left thigh to knee and left leg is weaker. Since this all happened at the same time the IBS-C and degenerative disc problem, I figure it's definitely nerve related.
Good luck and glad you got the distance education :) I'm sure that will help with stress levels :) and you won't need to have a bathroom app if you go out.( they have one for the movies..it tells you what time in the movie is slow or boring so you can go bathroom)
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