Originally Posted by lostsoul62
I have kept a Diary for over 20 years but I only go back 2 years for health problems. I've also been depressed for over 10 years. Over the last 2 years about 1 out of 10 days I Don't Feel Well. I'm not sick but if I had a terminal illness this is the way I would describe it but I had a lot of test and it seems I'm OK at age 67. I told a doctor that I Don't Feel Well. He didn't know what that meant. After trying to explain what it meant for 5 minutes I just left and contacted my VA senator because this guy was the worst doctor on the planet. Of course I got a new doctor. This is my 3rd day I haven't felt well and I should get better I hope. Anyway has anyone else had this experience?
Hello, lostsoul62. Firstly, I am very glad you self-advocated and got a new doctor. It is a sad state when the authorities license someone to practice medicine because they have the paper credentials but have no people skills! Hopefully your new doctors is more empathic and proactive.
I'm not exactly sure what you feel like. I was diagnosed with depression 20 years ago, and have read that some of the symptoms of depression are lack of appetite/nausea, physical aches and pains, low to no energy, and fatigue, which I had/have. Along with the dark moods and sad thoughts.
Then when different and more troubling symptoms arose, I was referred to an infectious disease specialist and actually got a name for my condition. He called it "chronic fatigue and fibromyalgia" and then basically said, there is nothing we can do for you - try to deal with it. Bye bye. Which set me on a LONG journey trying different therapies and healing modalities that worked best for my body. I also found out that depression commonly occurs in people who have CFS/FM. (No kidding - it is depressing to be chronically unwell!)
I share this because this experience taught me that medical "science" is not always an exact science, especially with symptoms that don't have a quick and easy diagnosis. Sometimes we - the patient - have to work hard to keep looking for a doctor who takes us seriously and find symptom reliefs that works best for our own bodies.
I basically feel like I have a flu every day. When I told my current doctor about the relapse of my CFS/FM symptoms, she kept trying to tell me it was "just" my depression. Grrr! Not helpful. Some doctors don't "believe" in this illness because it is so difficult for them to diagnose. So I found a Chinese herb practitioner who took my complaints seriously, and now I'm trying herbs to manage the symptoms.
When the symptoms get bad, I cut back on my workload and make nutrition and rest my top priority (easier said than done, I know!) And whenever anyone tells me "Well, you don't look sick", I fight back the urge to punch them in the head for saying something so insensitive and explain that many illnesses have invisible symptoms that others can't see but are indeed felt by the person living with the illness.
I hope you find relief and comfort soon! Take really good care of yourself!