The monster called Epilepsy
Take This Life  

Go Back   Take This Life > Challenges > Life's Other Challenges > Employment


The monster called Epilepsy

This is a discussion on The monster called Epilepsy within the Employment forums, part of the Life's Other Challenges category; I visited the neurologist yesterday; he told me I am epileptic now. I was apparently really already epileptic in 2014 ...

join us
Reply
 
LinkBack Thread Tools
Old 12-21-16, 10:15 AM   #1
Senior Member
 
hottea654's Avatar
 
Join Date: Apr 2009
Location: Texas
Posts: 3,406
My Mood:
Default The monster called Epilepsy

I visited the neurologist yesterday; he told me I am epileptic now. I was apparently really already epileptic in 2014 because I had 3 seizures back then, but I was uninformed of it by the professionals I was treated by at that time. Based on the definition of what an epileptic is, I am one. Officially right now I'm not allowed to drive myself anywhere for at least 6 months. Not for the job or any other part of life. I have to go get my license 'reinstated' once I'm cleared by the neurologist in 6 months and that could take time too, so he says.

My managers with the post office act like they want to terminate my employment because as a part of my job I am required to be able to drive. But the ADA says that they must make 'reasonable accommodations' for my situation because I have a disability such as moving me laterally into a non-driving position until I am cleared to drive again. I know we have some of them and need them to be filled so they do exist. I'm not sure if my bosses are aware of this detail- that I have a disability protected by the EEO Commission and the Americans with Disabilities Act.

So long as I am seizure free for 6 months and re-evaluated by the neurologist at that time, I can go back to driving for regular life and for work. However, the disability will never go away. Once an epileptic, always an epileptic from what I can find so far.

This feels like a big black tar container just poured out of the sky all over me. Then a big red stamp that says "defective" fell on top of it. I've just gone from being an educated, smart, self sufficient woman who lived in the wilderness in Alaska all summer one year in a tent and bicycled across the USA coast to coast alone, to a dependent, limited, hand holding cripple! (that's how it feels) Now everywhere I go I have to be driven or I have to walk/ride my bike. I'm all for exercise but I'm not confident I can realistically ride my bike 30 miles each way every day in all weathers at all times of the day to work each day. I can't always depend on my husband for transportation- he has to work too. I could joke about taking the short bus everywhere I need to go for a while- and it's kind of funny- but part of me is just stunned by the new changes and wants to break down and cry. I feel angry this is my challenge. I feel afraid it will mean I won't be able to work any more somehow. I know I have the power to create something better but I feel let down by life, by myself. It's like being penalized officially for just being human. Occasional depression is one problem. Now this.


My life's in jepordy, baby, whoo-o-o-ooh....
__________________
We have to become creative problem solvers, not just tolerant burden barers.

Last edited by hottea654; 12-21-16 at 10:20 AM.
hottea654 is offline   Reply With Quote
Old 12-21-16, 03:12 PM   #2
Member
 
Join Date: Oct 2006
Location: UK
Posts: 339
My Mood:
Default

What news you have had... and how strong you must be to post here and explain what you are feeling. I cannot imagine what your mind must be going through, but what I can say is that work and job is not everything in life and it does not need to define your identity. Of course you want to work and be a productive member of the employment world, but you can be a productive member of the world in general in many other ways. Work does not need to define you. So if you have to take a different job in your office, so be it, but explore other areas where you can give of yourself. You may be surprised how much it benefits you personally. Keep talking to us here at TTL and take good care.
ziedite is offline   Reply With Quote
Old 12-22-16, 09:48 AM   #3
Senior Member
 
hottea654's Avatar
 
Join Date: Apr 2009
Location: Texas
Posts: 3,406
My Mood:
Default

Thanks. I'm still adjusting to the whole mess of it all. I worked all day yesterday trying to pull together information on the issue and find out who I go to for representation for work, along with if I really do have to offer up the medical info it appears I'm being asked to offer. That's private stuff, really. Everything seems to unwind at the same time sometimes. I've got appointments set to research further into my condition and then suddenly other pains start to surface so now I've got to go see a GP to hopefully diagnose and treat some minor stuff. All this while I sit at home unable to earn a dime due to the decisions of a fill-in manager who may not really know what he should do who says I "can't work" at all until I'm cleared by a doctor. But, I already WAS!!! He seems to think one doc isn't enough. I'm supposed to be cleared by 2 of them! I can still function quite well in a normal fashion every day. Its the moment of time where the electricity in my brain goes amiss, and so far that's once every 2.5 years. That is what I have to live down every other day of the year for a couple years. Just one small event and it's not like heart disease where you have a condition that is unhealthy and you can change it- they don't even know why I have them. SO frustrating!
__________________
We have to become creative problem solvers, not just tolerant burden barers.
hottea654 is offline   Reply With Quote
Old 10-14-17, 09:17 AM   #4
Member
 
Join Date: May 2014
Posts: 390
My Mood:
Default

Keep doing your research and find out your rights and obligations! Yes, that info is private but find out who are the ones who absolutely need to see that info and stick to your guns. Only the people who are supposed to see that info would be the only ones who are privy to that.

And keep reminding yourself that the epilepsy is not your fault. It can happen to anyone regardless of how good they are.

Best of luck in this battle and remember, you're not alone here.
DPG1 is offline   Reply With Quote
Old 10-15-17, 08:11 AM   #5
Member
 
tigerlover's Avatar
 
Join Date: Aug 2017
Location: i am in Europe(Belgium)
Posts: 567
My Mood:
Default

@hotttea==most of us do not know too much about epilepsy and i reckon if you suffer from this condition it's not such a positive thing...you call it a monster..according to what i know and have witnessed in life there are grand mal and petit mal seizures...my Dad had a seizure and when the doc came to check upon his condition he called it an epileptic attack due to alcohol abuse??i did not understand until few weeks after that we had to take him to hospital due to a tremens delirium attack...and that's not simple to undergo or to witness...
when i was at school between 63 to 66 there was a girl in our class suffering from epilepsy...nobody could see or notice it until one certain day she got a fit on the courtyard,she told us afterwards that it only occured after long intervals of time,recently i was at a rave in Holland called space safari NL..suny day...everybody dancing etc...
i talked to the girl in question...suddenly she fell to the ground,blood out of her mouth,stupor,shaking...everybody was thinking==did she take drugs etc..the medical team was in my opinion much to late..nobody knew exactly what to do and the girl in question was really undergoing in what i was thinking an epileptic attack,nobody did anything..we tried to make her comfortableto talk to her...she did not react too much...just shaking...they always told me to put something between her teeth to prevent choking etc..the team arrived...put her on a stretcher and took her probably to a hospital or a place where she could be treated...i do not know really...your story is a private thing which can create worries,anxiety,depression..we are not doctors here but we all hope you feel O.K regarding your job,your driving etc...i found this link of an organisation who deals with epilepsy..i bet MD stands for Maryland USA
that being said keep on posting her...we do care...

https://www.epilepsy.com/learn/about.../what-epilepsy

Last edited by tigerlover; 10-15-17 at 08:14 AM.
tigerlover is offline   Reply With Quote
Old 10-31-17, 11:17 PM   #6
Senior Member
 
hottea654's Avatar
 
Join Date: Apr 2009
Location: Texas
Posts: 3,406
My Mood:
Default

Thank you all for your concern for me!

I think I need to give an update on my epilepsy condition, where I am at now with life. I did a bunch of research while I was mostly stuck at home on what causes seizure. I wanted to know more about what might factor into having it, what is known about if you have had one, and what can be done for it. I'm sure there is much more to know then I do, but what I learned helped me to understand why I had them.

The really short answer is that they don't always know why people have seizures, or what causes them. They can't necessarily prove you had one with any cat scans or x-rays or anything unless you have one right then. Mostly people are seen having one, then the exams show that your brain has damages from having one, but they are not always able to tell.

I suffered a head injury as a child that could cause seizure or make me more prone to having them, so that is a possible factor for me. I don't have family history of them or anything that could otherwise explain it biologically. Something very important, though, I found a list on the epilepsy websites about which over-the-counter drugs can cause a seizure reaction. I was never asked by the doctors if I had taken anything such as allergy, cold or flu medicine when my seizures happened. This was very important realization for me because I had taken the drug called Diphenhydramine Hydrochloride and it was working in my body each time I had one of the grand-mal seizures. (The brand name for it is Benadryl.) The number one OTC drug on the list for causing seizure is Diphenhydramine HCL!!! It is used mostly as a sleep aid or as an antihistamine. It is included in most cough/cold/flu medicines that are for night time use as well as many things that include treatment of allergies. You can buy it in generic or name brand pills all by itself especially for your allergies, which I have plenty of.

I talked with my neurologist and he understood about my realization. He included the information in his notes about my epilepsy condition when he had to send my medical information to the Department of Public Safety. The DPS cleared me to go back to driving after my 3 months free of seizure, which only took another 3 months of documents and waiting.

I went back to work after that and so far things are good. I feel confident that it was the drug that was the key because all that time I was waiting to go back to work, I did not take any of the drugs I was given to suppress any seizure I might be prone to having and I never had one. I put them under the counter in the bathroom... I have all these bottles of pills and samples of pills sitting there still, but I never touched them.

I still sometimes feel a feeling that reminds me of how it felt when the symptoms of seizure were just beginning. I can't tell if the symptoms are just sinus pressure changing, stress, maybe my stomach being a little upset like if you take vitamins without enough food, or something bigger to worry about. It has only happened a few times and each time I had taken my vitamins without a lot of food, plus stressful work, so it could just be that. So far my feeling a little strange results in nothing at all so I try to remain alert but not worry too much. I am very careful to check all medications I get to be sure there is no Diphenhydramine in them too.
__________________
We have to become creative problem solvers, not just tolerant burden barers.

Last edited by hottea654; 10-31-17 at 11:19 PM.
hottea654 is offline   Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 12:28 AM.


Powered by vBulletin® Version 3.8.8
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Shoutbox provided by vBShout v6.2.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
vBulletin Security provided by vBSecurity v2.2.2 (Pro) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

Content Relevant URLs by vBSEO 3.3.2